He does agree that I am not tolerating the INH & need to try something else.
We had a nice long talk about how the government runs programs... Basically they have a checklist & a protocol & they do not deviate from that. Even if all common sense says to, lol. Their employees are not allowed to think for themselves.
But it is still unfair that I would have to stay on this med until my liver starts to fail. Basically I have to sacrifice my liver to the government until I can be rewarded with a med change. Fun times.
I say that's a no go. I fully intend to make sure my liver is fully functioning and ready to make up for lost times. :) I have many plans for us.
So, he can not help, but Infectious Disease docs can. He is sending me to one & getting in touch with them to give his recommendation. Yay! Score for me.
Even if they do not want to change the INH for some strange reason it will be ok. I will at least feel like I have been heard & looked at as a whole body & not just a number. I should hear by next Monday about an appt. Lets all keep a positive outlook on it. More to come soon...
Today was my little ones 5th birthday! She was so excited today! After her swim lessons we stopped at Sonic for malts (yummo) and came home to swim. Of course daddy joined in, if one of my fishies is in the water the other must follow. :)
We swam until it started raining, well actually we swam until it started raining harder & the thunder came. Then we took a fruit break.

No comments:
Post a Comment