Monday, June 30, 2014

Day 62 - another short post

Day 62, pretty uneventful for me. Nothing new as far as s/sx. I am really looking forward to Wed & my Dr appt. let's everyone cross our fingers & toes! :)

I am thankful for great friends who keep me sane... You know who you are!

I am planning on gathering info for all my s/sx on INH to take to the dr. 
It's gonna be a long list, lol! I will check back tomorrow to see how it's coming! 

Goodnight friends!

Sunday, June 29, 2014

61 days - end to a great weekend

Day 61 has been pretty laid back. Packed up at the Lakehouse, came home & unloaded the car. Wait, Maddie wants to swim so we better do that ;)

So we swam... Who needs to unpack & clean house? Lol

Still feeling pretty tired, otherwise not much change. Except that my skin is super sensitive these days. I was outside in the sun (with sunscreen) for about 45 minutes & my face is burnt. Yuck. Same thing happened last weekend, guess I need to wear a hat. 

Well, I had better go. Maddie has a ton of presents...she is do excited & wants to play with everything. Thanks again to everyone for coming out & making her day great!

Saturday, June 28, 2014

2 months in, 60 days complete!

Only 7 more to go! Well, let's just go with the 2 months down, the other is too depressing, lol. 

Happy Day 60! It's also been Maddie's bday party at the lake. For everyone who came, thank you so much for giving Madison such a great party! For everyone who missed, you missed out on some fun. But I gave her the messages from everyone who sent them. She had a fantastic day. 

From the bounce house/slide, to swimming, the presents & cupcakes, it was great. She is one worn out little girl. 
I've said it before, but I'll say it again. I am so lucky to have such great family & friends. :) it was a great day.

Talk about a princess! And she is turning five! Wow. 

INH -wise it has been ok. Lightheaded a few times earlier in the day & a few memory lapses. Then the recurring evening headache. Fun times. 
But it's not been too bad. :) Being surrounded by loved ones helps.

My little munchkin is out, and I'm not far behind her. Goodnight folks! 

Friday, June 27, 2014

Day 59 ...almost 2 months!

I am barely making it in time for my post tonight. Yikes! :) been busy busy busy trying to get things ready for someone's birthday party.  So I just finished washing the dishes... I have no problem letting then dry themselves, lol. 

I still need to wrap presents (double yikes), cut up fruit & veggies, make cookies, put the party decorations up & put together the favor boxes. Oh crap, gotta air up the balloons also! All before noon tomorrow. And make a crapload of slider patties, cut up cheese. Aw hell, I gotta call it a night so I can rise & shine early tomorrow. 
Goodnight y'all! 

Thursday, June 26, 2014

Day 58

I am trying to not be a Debbie Downer today. I've been pretty busy so it has been ok. :) and I had really good company at work. 

On the way home I got another bad headache & that's where I am now. Boo. 

I made an appt with my FP doc to talk to him about the INH & side effects, etc. I am hoping he can help. Next Wed will be that day. I totally trust him & that he has my best interests at heart & not a worry about cost/budget/government crap. I'm gonna be optimistic about it & just let go of the worry. Some way or another, next Wed I will be feeling better about all of this. 
Thanks to all of you guys for your comments, text messages, etc... I really means so much! It really has helped me the last couple of days. You guys rock! 

I have a million things to do tomorrow to get ready for the weekend... 
The story will continue tomorrow....

Wednesday, June 25, 2014

Day 57 - totally crappy

So, yesterday I gave myself false hope. The whole wanting to change meds is a no go. Apparently I am not suffering enough & don't have "toxic" symptoms. 
And it poured buckets & the roads were rivers & I got lost. Terrible day. :( 

That's all I can manage tonight. Maybe tomorow I can let more out. Goodnight.

Tuesday, June 24, 2014

Day 56 - warning, kind of a downer post

So tomorrow is the day... My next appt. I am nervous because it's a new nurse & a new location... And I have been super sensitive lately, damn near everything upsets me. :( I'm not so sure what that's all about, but I do have some suspicions. 

I have also been experiencing some difficulty remembering things, words or entire conversations just slip out of my mind. I was thinking it's just my ADD kicking up or something, but it's never been this bad. I'm also putting words in the wrong places when I am speaking. My wonderfully awesome coworker, Princess Melissa, has had to deal with me today. Poor thing, lol. Several times I would notice her looking at me like I'm crazy (yes I know!) but she just wasn't sure that she was hearing me correctly. 

So this, on top of the other side effects is really getting to me. The acneform eruptions (or whatever you want to call it) is getting worse. I am very emotional. In short I am a mess to be around, but I've been trying to avoid discussing it. My poor, poor friends. Lol. And my poor family. 

Tomorrow I am going to beg this new nurse to change my meds. I don't know how much more I can take before losing it. I feel like there's something new every few days. Boo.
Let's all cross our fingers that she listens to me. If she doesn't, I may lose my marbles after all & they might send me to ASH... Just kidding. Maybe. 

Other than that today was normal. Obviously I am very emotional & this probably sounds like a pity party, lol. It all just kinda hit me this afternoon. I think hearing myself today talk to Melissa I realized how bad it has gotten & that I need to face it. I don't really want to.

Sorry for the downer guys, I just can't think of anything fun to write about. I am really hoping I have better things to discuss tomorrow. :) 
I'll leave you with some wise words of advice from a country song I was listening to today... It really made me laugh....

Run and hide your crazy and start acting like a lady. 

This totally fits me lately, and maybe a few of those other friends too. :)
Goodnight.